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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1566)

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@xplantsister

@gphetteplace and @rosemarya, thank you for your replies. After I wrote the introductory message, my brother was re-admitted to the hospital (2nd time not including transplant operation). It is somewhat a relief since he is under the care of professionals (and scary at the same time). Several things in this episode concerned us and, maybe, these signs will help others. His teeth were chattering even though he was not cold and his tremors (which he developed prior to the transplant due to the ammonia accumulation) had returned and were worse. He was more than usually fatigued and so pale and was having trouble urinating. He said the "normal" urges for urination and BM were "not right." We also were having trouble getting him to eat. Ultimately, he let us call the post-transplant coordinator. Now, the MDs are running many tests and, hopefully, we will have a clearer picture soon. I am so grateful to know others have successfully managed this road and I wish you all the best health.

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Replies to "@gphetteplace and @rosemarya, thank you for your replies. After I wrote the introductory message, my brother..."

@xplantsister Your brother's symptoms are definitely not typical from what I know so I am glad he is now inpatient for them to figure out the problem. Hopefully, it will be a minor medication adjustment.
I hope you will let us know how he is doing and what they discover. I am sure it is very concerning for you and your brother. As I commented before, he really is lucky to have a guardian angel sister watching out for him.
JK

@xplantsister, I am thinking about your brother and hoping that he will be able to get some rest tonight.

Hopefully this is a minor bump in the road to recovery. Am I correct to assume that you are at his transplant hospital? It just sounds like that to me from reading your post. What about you? Do you live nearby? Will you be able to get some sleep and something to eat. As a caregiver, your health and wellbeing is equally important.