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Liver transplant - Let's support each other

Transplants | Last Active: 3 days ago | Replies (1623)

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@rosemarya

@xplantsister, I want to welcome you to Mayo Connect. We are patients, and we are here to share our experiences to support and help each other when you need someone who understands what it is like to live with a transplanted organ. We do not provide medical diagnosis.
Thank you for your concern and care for your brother during his recovery.
I am a liver and kidney recipient (2009) and I would like to say that many of us share similar experiences with each other, and other share different experiences. So normal can be a broad range of things. Will you share more about your brother's current situation. What kind of 'things' are going on with him that concerns you? What has your brother's doctor said about his current situation?

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Replies to "@xplantsister, I want to welcome you to Mayo Connect. We are patients, and we are here..."

Hi,
This is the first time I have tried to get onto the online liver transplant support group. Not sure exactly where/how to connect. I live in Tucson, AZ. I experienced sudden liver failure two years ago; have been on the liver transplant list for about 1-1/2 years. Very tired of the prednisone now but nothing I can do.

@gphetteplace and @rosemarya, thank you for your replies. After I wrote the introductory message, my brother was re-admitted to the hospital (2nd time not including transplant operation). It is somewhat a relief since he is under the care of professionals (and scary at the same time). Several things in this episode concerned us and, maybe, these signs will help others. His teeth were chattering even though he was not cold and his tremors (which he developed prior to the transplant due to the ammonia accumulation) had returned and were worse. He was more than usually fatigued and so pale and was having trouble urinating. He said the "normal" urges for urination and BM were "not right." We also were having trouble getting him to eat. Ultimately, he let us call the post-transplant coordinator. Now, the MDs are running many tests and, hopefully, we will have a clearer picture soon. I am so grateful to know others have successfully managed this road and I wish you all the best health.