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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1529)

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@contentandwell

@msgtrebholtz Hi, Jason, I too welcome you to Connect, particularly to the liver transplant group. I had my transplant in September, 2016, at Mass General Hospital.
You have already been through quite a lot, that's for sure, but you have a great positive attitude. I am glad things are going so well now.
I agree with you, I wish I had been aware of this group when I was pre-transplant. It is always helpful to have contact with people who have or have had similar circumstances.

@rowdyramsey Ramona, I think you are correct, that tacrolimus must be the best immunosuppressant for liver transplant recipients. It seems to be what everyone is initially prescribed. Then some of us, me included, have problems that require a different immunosuppressant. Tacrolimus was causing my creatinine numbers to be high. We tried battling that by drinking a lot of fluid daily -- 80 - 100 ounces -- but the high numbers persisted so I was changed to sirolimus. That has worked out well for me. I never had any problem with tacrolimus that I felt though, but I have heard of many people who do have problems with it.
JK

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Replies to "@msgtrebholtz Hi, Jason, I too welcome you to Connect, particularly to the liver transplant group. I..."

My liver doctor told me that it was the best. I have no clue what’s better! When I was having those rashes so bad,the doctor would not change my meds , (Tac) because he said it was the strongest and “best” one out there. They were not willing to take me off the Tac. no matter how bad my rashes got. Who knows! God bless