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Liver transplant - Let's support each other
Transplants | Last Active: 3 days ago | Replies (1623)Comment receiving replies
Hi @msgtrebholtz. Jason, I'd like to add my welcome. It's so nice when people find Mayo Clinic Connect at the beginning of their journey to help prepare, ask questions and get support. I say beginning, but this is not really a beginning is it? It's just the beginning of learning about transplant. You have vast experience with ulcerative colitis, colon surgery, ostomy and more that I'm sure will benefit other members who are beginning those journeys. I invite you to also follow these support groups on Connect:
- Digestive Health https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/
- Ostomy https://connect.mayoclinic.org/group/ostomy/
Your knowledge and experience will be welcome.
Jason, when were you diagnosed with PSC? How is your health today?
Replies to "Hi @msgtrebholtz. Jason, I'd like to add my welcome. It's so nice when people find Mayo..."
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I really appreciate the warm welcome from all. Thank you!
I was diagnosed with PSC when I started having the gallbladder issues. Technically it wasn't the gallbladder, but a duct cyst that would inflate with bile then whenever it felt like it he would rapidly drain into my stomach (approx 200cc) . I can only describe what would happen next by saying I would have given Linda Blair in the exorcist a run for her money on the projectile vomiting. That was sometime in the spring of '14 and had it all removed in December of '14 - Merry Christmas!! LOL
I have read that UC and PSC are buddies and generally come along at the same time. My UC started in March of 2010. It actually began because of a bout of food poisoning. I am told that an event can trigger it if it is already there but dormant. If they did start at a similar time then I have had it 10 years give or take.
As for my health it is good. My liver is asymptomatic. All my liver function tests have always been in the normal range. Since I dont have a colon my UC is cured. The only real issues I have are problems with skin, most notably around my ostomy, but I am slowly working out what works well and doesn't.
I dont know if anyone here is in Rochester, but I am in Dr Poterucha PSC surveillance group. He is a great guy and has a super bedside manor. I could chat with him all day.
I am so happy to have found this site. I wish I knew about you earlier, but I am here now. Thank you all again for welcoming me. This has been great so far!