Connect
← Return to Liver transplant - Let's support each other
Discussion
Liver transplant - Let's support each other
Transplants | Last Active: 3 days ago | Replies (1623)Comment receiving replies
Hello there! M ame is Ramona and I’m from Maryland. I had a liver transplant July of 2015. I was 47 yrs old. I am on ad have been on tacolomus for the entire 5 yrs. In the beginning I was on 24 a day.1 mg. Throughout the past 5 yrs.,they have slowly taken me down. Now I only take 4 mg a day. Big difference. Tacolomus gave me a serious side effect. I had horrible rashes on my body. Under my breasts and below my belly button. They smelled,they were sore,had red blotches ,very ,very,very painful!! They have mostly all gone away after my last decrease several months ago!! Did u have any problems with it? My doctor said that tacolomus is the very best medicine for liver transplant!
Replies to "Hello there! M ame is Ramona and I’m from Maryland. I had a liver transplant July..."
@rowdyramsey, Tacrolimus is one of the medicines that I also take for my Liver and kidney transplant. In fact have taken it for 11 years now and have not noticed any rash or blisters as you describe. It sounds like this was in the past, -I sure hope so.
Unrelated to tacrolimus -I want to add that I am from a family who sweats alot when active, and I have developed an itchy redness after wearing my sun hat, and along areas lere my clothing fits snug and wet with sweat especially during summertime hiking. Scratching makes it more uncomfortable, and I didn't want to cause any open areas, so I (ready for this?) use a little bit of foot powder - the OTC powder for athletes foot care - and it works to cure the itch. A dermatologist suggested that I try it.
Connect
@rowdyramsey my transplant was Nov 28th 2018. Initially I was taking 5mg tac every 12 hours but it was reduced to 1mg every 12 hours after about 4 months. I have never had any problem with it at all. My doctors did insist that I take only Prograf and not any generic kind.