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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@contentandwell

@stella25 That's excellent that he is now happy with his new transplant center. We were not happy with the first transplant center that we looked at, recommended by my PCP, so I did my own research and chose Mass General in Boston. We could not have been happier than we were with the care there, and it still continues.
It really is so important to be comfortable and confident of your transplant center. Hopefully he will be transplanted some time relatively soon. Is his MELD getting high enough yet to make him a potential candidate soon?
JK

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Replies to "@stella25 That's excellent that he is now happy with his new transplant center. We were not..."

His MELD is currently 17. We are searching for a living liver donor for him. He has PSC and like many other PSC patients, living donation is the best solution. PSC patients are at a disadvantage since they face unique risks and disease-specific complications not factored into their MELD. We have had 10 - 12 potential living donors for him but all have been rejected for one reason or another. I have faith the right donor will come at the right time:-)