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Liver transplant - Let's support each other

Transplants | Last Active: Jun 22 9:17am | Replies (1606)

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@contentandwell

Hi, @jacqualin I too welcome you to Connect. I had a liver transplant in September, 2016, and I did not have any fluid retention beyond what was slowly going away after my transplant. I had a lot of fluid retention before it, in the last 4 -6 weeks I gained about 35 pounds of fluid. That did take a while to totally dissipate but I am sure it all had by Christmas.
Each patient seems to experience different symptoms but if your transplant team is not concerned it is probably nothing to worry about. I agree with @rosemarya, if you develop a temperature I would call the transplant team immediately. It sounds from your follow-up message as if they are already aware of the fluid though.

@beckyy39 I'm glad to hear you are fine for now with a toilet paper supply. I am using Instacart primarily to get our groceries and supplies. I always put toilet paper down as something I want but so far by the time my order is shopped there is none. I have an order being shopped on Tuesday so hopefully I will get some then.
JK

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Replies to "Hi, @jacqualin I too welcome you to Connect. I had a liver transplant in September, 2016,..."

Thank you so much for your reply! My transplant was unexpected. I've been cabin crew for a major airline for 31 yrs, and used Tylenol PM as my sleep aid. I think you know where this is going!! I got in from an Intl. trip on 1/16/20...didn't feel good. Went to urgent care on 1/20/20, I had the flu...I started vomiting on my way out...they sent me to ER where more test were ran...I was in acute liver failure as well...my MELD was 40 1A...on 1/23/20 I became the very fortunate recipient of a healthy liver. I'm very blessed! My transplant team is aware of the fluid, at this point we're just monitoring it. I was just curious if other patients had had this, so thank you for sharing your story with me! It's great to talk to fellow transplant patients! I'm so glad I found this page!!