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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1623)
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@jacqualin

Good morning Rosemary...I'm a recent liver recipient, Jan 23, 2020, recovering well. I'm 11 weeks out, my clinics have changed to video appointments, which is fine. I've been experiencing fluid on my right side, which I did discuss with my NP. I did a CT scan 3 weeks ago, my labs are great, no concern from my liver team. I'm using warm compresses, and continuing to walk daily as directed. I've been scanning the internet to see if this is common with other transplant patients. Any comments or ideas?? Thanks so much!!

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Replies to "Good morning Rosemary...I'm a recent liver recipient, Jan 23, 2020, recovering well. I'm 11 weeks out,..."
Rosemary, Volunteer Mentor | @rosemarya | Apr 11, 2020

@jacqualin, Welcome to Connect, and congratulations on your transplant and ongoing recovery. We are so fortunate to be living in the age of technology and electronic visits, aren't we? I have not experienced an electronic visit yet.
I did not experience right side fluid after the initial removal of the transplant surgery drain tubes. At 11 weeks, your body is still healing so there could be a relationship to that. With a transplant and being immunosuppressed, things can change very quickly and I am wondering whether this has started since your 3 week old scan?
Why are you using warm compresses? Is it causing pain or discomfort?

I encourage you to make contact to your transplant team or NP (if associated with your transplant dept) and tell them about this. It is always OKAY to call them when you have questions or have any concerns. I suggest that you do it Monday morning. If you develop a temperature of 101 do not wait until Monday, instead call the after hours/emergency phone number they provided.

@jacqualin, Will you let me know what you find out after you talk to your NP on Monday?

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JK | @contentandwell | Apr 12, 2020

Hi, @jacqualin I too welcome you to Connect. I had a liver transplant in September, 2016, and I did not have any fluid retention beyond what was slowly going away after my transplant. I had a lot of fluid retention before it, in the last 4 -6 weeks I gained about 35 pounds of fluid. That did take a while to totally dissipate but I am sure it all had by Christmas.
Each patient seems to experience different symptoms but if your transplant team is not concerned it is probably nothing to worry about. I agree with @rosemarya, if you develop a temperature I would call the transplant team immediately. It sounds from your follow-up message as if they are already aware of the fluid though.

@beckyy39 I'm glad to hear you are fine for now with a toilet paper supply. I am using Instacart primarily to get our groceries and supplies. I always put toilet paper down as something I want but so far by the time my order is shopped there is none. I have an order being shopped on Tuesday so hopefully I will get some then.
JK

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