← Return to Liver transplant - Let's support each other

Discussion

Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1623)

Comment receiving replies
@rosemarya

Hi, @brianna. Welcome to Connect. I am happy that you have joined us. This is a great question, and I will share my experience with ascites, as long as you understand that everyone of us is different in how our body acts with liver disease.
Have you had a paracenthesis? It is a procedure that is administered to drain the excess fluid that collects. I needed one around every 10 days and a good volume of fluid was drained each time, and my "pregnant" body was normal again for a couple days.
As for walking, I have always been a walker and a casual hiker. I could barely walk across the room pretransplant, because it left me breathless. After transplant, I was able to slowly begin walking to build up the wasted muscles and my endurance. I transplanted in the month of April, 2009 and in October 2009, I was given the approval by my transplant team to hike again. My husband and I went on some hikes in the Great Smokey Mountains.
Brianna, are currently on the transplant list and waiting of an organ? How can I help you as you move forward?

Jump to this post


Replies to "Hi, @brianna. Welcome to Connect. I am happy that you have joined us. This is a..."

Thank you for sharing your experience. I am currently in the process of evaluation. I have not been added to the list yet. I'm really not feeling well and I'm just scared. I would love advice about how you kept going when things got so tough.