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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
Oh yes. I was diagnosed as end stage Metavir 4, decompensated type 3 yrs ago. I have pulmonary hypertension, splenomegaly , very large vessels in the abdomen and part of my inferior vena cava is beginning to flow backwards. My liver density is a 96. I don’t think I’ve ever heard of anyone else’s being that high. Recently my AFP began rising but no mass found yet. That’s pretty much what I can think of right off the top of my head. Oh yeah, and I really getting yellow. Does that help you know where I am?
Replies to "Oh yes. I was diagnosed as end stage Metavir 4, decompensated type 3 yrs ago. I..."
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@khh, As a patient, I had to look up Metuvar 4, and I learned that it indicates the amount of inflammation in the liver and the stage represents the amount of scarring or fibrosis. I recognize some of the symptoms that you are describing from my own liver disease journey. Connect is a patient to patient group, and as such, we share our experiences and are not qualified to give medical advice.
The reason that I asked you about a diagnosis is because that diagnosis is how your doctor and medical team will be able to identify what you need in the way of treatment and care. I encourage you to continue your proactive self advocacy as you seek answers. Have you been able to schedule an appointment with the doctor yet?