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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@khh. It sounds as if you are staying strong, that’s admirable. To me HE was the most miserable thing, I still get tears in my eyes when I remember the more severe episodes. I was very fortunate that I wasn’t working.
@beckyy39 as I mentioned the xifaxan kept me HE free for a long time too.
I hope the eval goes well and produces good results, and that you will update us. I feel such a bond with those of you going through the process and who have HE. I think only those of us who have “been there” can understand completely.
Hugs to both of you.
JK
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@khh @beckyy39 I had moderate to severe HE episodes. I did go into a coma (that's when they diagnosed me) and I was out for 3 days... unresponsive. Then I stopped breathing on my own. They were just about to hook me up to a ventilator when I came to. I was hospitalized for three weeks. I didn't know what month it was, day, my address, telephone number basically any personal thing. It was frustrating!! I couldn't walk or eat or go to the bathroom on my own. Catheter and Depends! Anyway it took me about 6 months to recover from that one episode. I was put on lactulose immediately but I still ended up in hospital a few more times. Then they added the rifaximin and I steadied out. My driving license was immediately suspended. My story is so long that I could write a book lol! Anyway, take HE seriously. Always tell your doctor even if you have a mild episode.