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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@contentandwell I under went 4 ERCPs post transplant and contracted pancreatitis 3 of those times. The first time I wasn't sedated enough and was fully awake and aware during the entire procedure. It was painful and I was gagging and choking the whole time. I have to undergo another ERCP on March 16th to either remove or replace my bile duct stent. I am a nervous wreck. Just getting over a bout of shingles.
Replies to "@contentandwell I under went 4 ERCPs post transplant and contracted pancreatitis 3 of those times. The..."
@ please tell them to make sure you are out..
I know they don't want you to have any more anesthesia than necessary but that is ridiculous! Happened to me once with an EDG...awful!!! Have one next Mon. I will be telling them and thinking of you.
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@gaylea1 Oh my goodness, you have been through some nightmares. I hope your upcoming procedure is less painful. I can understand your apprehension. I have been very fortunate in not having any post-transplant problems.
@joanaiken I never got the to coma stage with my HE episodes but I remember clearly one where I was sitting on the sofa and completely uncommunicative. It was like watching things going on outside and beyond me. My husband called our friends over, he is a doctor, and he told my husband to call an ambulance. I was basically catatonic. Such scary stuff.
JK
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Wow. I am so sorry to hear that !!!!! Pancreatitis 3 times is 3 times too many. I have had several ERCPs and was given Propofol. I was out the whole time and no bad after effects. I also had shingles 1 year post 2nd liver transplant. How immunosuppressed are you ?