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Liver transplant - Let's support each other

Transplants | Last Active: May 16 6:52pm | Replies (1572)

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@jeanne5009

@contentandwell
I have not had anything severe enough to send me to the ER. Always able to get to the doctor. Mine is mild with headache, extreme tiredness, crazy dreams and irritability. I take Rifaximin 2 times a day and was on lactalose but cut back on that just recently when I developed chronic diaherria. Going in for an EDG and biopsy of colon next week. I have also developed vertigo and interstitial cystitis. Both are really challenging. Never a dull moment. AND...my caregiver has developed a cyst on his pancreas. He is deciding when to have the Whipple procedure done. Lets talk about stress. We are all dealing with roadblocks that can sideline our efforts to ....taking care of us.

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Replies to "@contentandwell I have not had anything severe enough to send me to the ER. Always able..."

@jeanne5009 I hope your HE continues to be that mild. Some people never have it at all so it probably will.
As I mentioned, for a very long time I just took xifaxan two times a day and that kept me HE free.
I hope your EDG and biopsy don’t unearth additional problems, and that your caretaker’s cyst will be taken care of easily. You and he have your hands full.
JK