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Liver transplant - Let's support each other

Transplants | Last Active: 6 days ago | Replies (1606)

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@khh

I guess I lost it. Anyway, she has stated upon my request, that she will set one up for after my appt the next time. That hasn’t happened. She is one of the NPs with the GI/liver people. No I’m not on any program list This is the first time I have reached out. I know 2 others on the list here at UMC; things have not gone well. She has not even worked me up yet. All of my friends who had transplants have gone elsewhere. I know your Jacksonville facility would be closer, but I was initially thinking about my family in Illinois and my boyfriend in Grand Rapids. Sorry I dozed off while I was typing.

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Replies to "I guess I lost it. Anyway, she has stated upon my request, that she will set..."

@khh I'm not sure what UMC is but you need to think of yourself and your own wellbeing. It sounds as if you know people who are faring better going elsewhere, perhaps you should also.
What is UMC?
JK

@khh, Like you, I have lost some of my replies. It mostly happens when use my laptop, Grrrrh. I am sorry it happened to you, and thankfully you were successful this time! Did you get a chance to check out the information that I sent you?

I understand your concern about a location that would e nearest to your loved ones. You are correct in considering that because of the support, emotional and physical, that will be needed along the way. I was originally listed locally, but complications resulted in me being transferred to Mayo Rochester. Fortunately my husband was retired and he was able to be at my side I have met others who have managed their long distance transplant quite well, too.
I was under the care of GI who consulted with a liver specialist at the regional transplant center. My numbers had been pretty much stable for years, but when my labs, MELD, and symptoms indicated that my condition was deteriorating, he referred me to the transplant center, where I was examined and accepted as a patient.

Do you know why your NP has not made an appointment with the doctor in the liver department? Have you been diagnosed yet with any particular liver condition?

Where are you located? I'm in Fort White, FL near Lake City and have been feeling very alone.