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Liver transplant - Let's support each other

Transplants | Last Active: 17 hours ago | Replies (1623)

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@benlam11

Karen, I live in Las Vegas and had my Liver and Kidney transplant last June. This was after a misdiagnosis in 2 Las Vegas Hospitals before they found out I had NASH (non alcoholic liver disease) and entered an altered state. After that, I sent all my medical records to the Mayo in Phoenix and set up an appointment There I was diagnosed on my initial visit, that I needed transplants and the evaluation process began, it took 9 months to complete the evaluation with me being emergency transferred from Las Vegas to Phoenix as I was totally unaware of when nor how I got there. They stabilized me (3 days) completed the last test and then placed me on the transplant list. I received my transplant the next day and after a rough 3 Months ( I also had carotid artery surgery causing a minor stroke) , I feel better than I have in years. My best advice - follow the advice of your pre transplant coordinator EXACTLY. Listen to your Doctor and Nurse team. Never be afraid to ask your questions - write them down prior to your visit. Have all forms completed when you get there. Speak with your Social Worker about financial problems ( you will be expected to remain in the area for a couple of months. You will be overwhelmed with "paper" - save it all and read it prior to the transplant. There are numerous websites that provide extensive detail about success rates, transplant hospital ratings, etc. I went through numerous emotions with grief for the family that lost a loved one, to gratitude that the donated organs were life giving, to my wife (my Caregiver) who was heroic in helping me get through. I hope you have a quick an peaceful journey through the process and always reach out at the Mayo as you will never be alone. Ben

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Replies to "Karen, I live in Las Vegas and had my Liver and Kidney transplant last June. This..."

Please read my reply to Rosemary. I have not seen a physician, nor have I been provided with a social worker. I have followed everything perfectly for 3 years so far and I still haven’t received a consult. And I have been requesting that from my NP. I would think that since I am still a working physician, she would at least let me have a consult. The findings in my scans are horrible including a liver density and a reverse flowing inferior vena cava. I have plenty of other terrible findings but those are not compatible with life that is the point I am at.
Karen