I go to mayo mn,and evey 3 months my meld is 19. And get HE often. I get it so bad i spend days in the hospital and even been transford to bigger hospital's

I'm in florida and am supposed to go to my eval visit March 10

@joanaiken I hope the biopsy went well. Tests like that can be so unnerving.

@jeanne5009 With a MELD of just 8, how severe are your HE episodes? Have any of them caused you to be inpatient?

@racing212 I too had HE a number of times that landed me in the hospital for two or three days. I have heard of people being in the hospital for much longer periods with HE though. In retrospect, I wish I had been transferred to my transplant hospital in Boston, rather than being in the local hospital here in southern NH. They were not very knowledgeable about HE and the treatment I had there was deplorable.
HE is scary and depressing. I consider my mind to be my best asset and to be so confused and irrational was very upsetting. I could feel them coming on and always thought if I just resisted enough I would not get one, but of course I did.

@beckyy39 If you have two willing donors who may be a match can they get tested and possibly have a transplant elsewhere? Having a living donor would certainly quicken the process.

@khh I too welcome you to Connect. I am very surprised that you have not seen a doctor. When I was to have my first appointment with a hepatologist they suggested that I could see her NP sooner than I could see her but I said that I wanted to be seen by a doctor and I was. On every appointment while I was pre-transplant I was seen first by the NP and then the doctor came in. Is there a different transplant center close enough to you that you could switch? For me, not seeing a doctor in all of that time would not be acceptable. If you go to the SRTR database it lists all of the transplant hospitals in the country. I had my transplant at Mass General in Boston and can not say enough good about them. They were wonderful and continue to be post-transplant.
JK