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Liver transplant - Let's support each other

Transplants | Last Active: 5 days ago | Replies (1572)

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@rosemarya

Has anybody ever read the information literature that comes with your medications?
Whenever I get my refills from the Mayo Specialty Pharmacy I get a very detailed information sheet. When I get a medication from my local pharmacy, I usually must ask for the information sheet/Medication Guide..
When I first read the long list of risks and potential side effects for my transplant medications, I was surprised and also worried. So, I began my list of concerns and...my transplant doctor or nurse has always been most helpful. They have explained to me about what this means for me and how they are going to monitor the health of my transplanted organs. And equally important they told me what I need to do help keep my organs healthy.

If you want to read about Sirilimus, Tacrolimus, and other medicatioins, you can find an alphabetical listing of Drugs and Supplements at:
https://www.mayoclinic.org/patient-care-and-health-information

Here are some highlights that I read - The dosing for both of these medicines will be different for every patient. And the risks of taking the medicine must be weighed against the good it will do. This is a decision you and your doctor will make. The medicine usually comes with a Medication Guide and patient directions. Read them carefully and make sure you understand them before taking this medicine. If you have any questions, ask your doctor.

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Replies to "Has anybody ever read the information literature that comes with your medications? Whenever I get my..."

Excellent response.

@rosemary Good link. My transplant does keep a careful watch on everything that involves my transplant. They leave other issues to my PCP, I think that is unlike Mayo.
On my lab work last week my sirolimus was a bit higher than it had been and they called me about it. They are leaving me as is for now but want me to get tested again sooner than usual so if it is higher they can decrease my medication. They want it at the lowest dose that will protect my liver but at the same time not leave me too unprotected to germs and infections.
Unfortunately, my blood counts cause me to have to continue prednisone. 😥
JK