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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)
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@gaylea1

@contentandwell ..I have never been advised nor has it ever been mentioned to me that my immunosuppressant ( tacrilomus- prograf ) could cause me kidney problems! Is this something I should be asking about at my next hepatologist meeting?

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JK | @contentandwell | Feb 12, 2020

@gaylea1 I presume you get regular lab work done. If your creatinine (and I think BUN too) is within range then you don't need to worry. Mine was going high so they told me to drink 80 - 100 ounces of water/fluid a day. That didn't do it enough for me so they switched me from tacrolimus (Prograf) to sirolimus (Rapamune).
You still see a hepatologist post-transplant? At my hospital, after transplant you no longer see the hepatologist, just the transplant team. All hospitals seem to have slightly different protocols.
Bottom line -- if they are not concerned then you don't need to be either!
JK

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