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Liver transplant - Let's support each other

Transplants | Last Active: Jun 22 9:17am | Replies (1606)

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@biteme

I was diagnosed in August of 2019. I have a MELD. score of 7. I would enjoy hearing from anyone with advice.

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Replies to "I was diagnosed in August of 2019. I have a MELD. score of 7. I would..."

Hi! I am 3 years in and have a Meld of 8. That says a lot for the docs who got me on meds quickly. It is a long road and I may never get a transplant because of my low Meld and the fact that I am almost 70! YIKES! Did I just say that???. Nonetheless, I have had all kinds of issues but none that are making me lose total quality of life. A good disposition and a sense of humor go far.....
What kind of liver disease do you have?
I can tell you to study your disease and research it thoroughly. This group will be a lifesaver for you. Don't be afraid of the stories we tell...you will have one of your own. We are all here to support each other and help to find new methods of treatment. Ask all your silly questions because we all do...in search of peace of mind! It works!

@biteme, I want to welcome you to Mayo Connect. I am happy that you have joined this discussion. Being diagnosed with a liver disease is a frightening experience. I imaging that being recently diagnosed that you are still in a learning phase and an adjustment phase.
I already see that you have received responses from @jeanne5009, @lisamb, and @joanaiken. I hope that you will read each of their posts because one thing you will soon learn it that each one of us has a different path and each one is an expert by their own experience.

@biteme, What would you like to ask? How can we help you?

Hi, @biteme Welcome to Connect. You have a very low MELD score, you are fortunate that your liver disease was apparently caught very early. I had a liver transplant in September 2016 and have not had any problems from it. I was told by the hepatologist who I went to after my cirrhosis was finally diagnosed that I probably had it for 10 years. I had symptoms that there was a serious problem starting December 2013. I actually had other symptoms before that were not considered to be serious - shaky hands, low platelets, being cold all the time, fatigue, and very severe leg cramps I was finally diagnosed in March or April of 2015.
What type of symptoms led to your diagnosis, if you don’t mind sharing? It seems as if we are all different.

@jeanne5009 A MELD that low after 3 years is great, especially if you are still able to have a good quality of life. It’s obvious that you are a positive person. I think that really does help. You can’t let the disease rule you.

@joanaiken I know that the wait for kidneys tends to be very long. Do you have any indication how much longer you will have to wait? Are you on dialysis? For some reason I never turned yellow before my liver transplant! As I said before, we are all affected differently.
JK