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Liver transplant - Let's support each other

Transplants | Last Active: Jun 22 9:17am | Replies (1606)

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@stella25

Hi Rosemary! Congratulations on your 11th anniversary!! You are amazing & such an inspiration to us all. I had so many questions when my son was listed for liver transplant a year ago. You were a huge source of comfort as you graciously answered those questions & extremely generous in sharing your own experience with all of us. I am forever grateful to you. To update you on my son. His MELD was at 34 when he was listed. It has since dropped and has remained fairly steady between around 14 & 17. Of course this makes it almost impossible for him to receive a deceased donor's liver. We have been reaching out to family & friends for a potential living donor. So far we have had 8 donors come forward. Unfortunately, all have been rejected for one reason or another. We continue our search & remain positive & hopeful. I am in complete & total awe of the individuals who have offered. True hero's:-) My very best to those of you who have been transplanted. May good health shine upon you. Prayers & love to all those waiting to be transplanted. You are not alone. We are with you:-) xoxo

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Replies to "Hi Rosemary! Congratulations on your 11th anniversary!! You are amazing & such an inspiration to us..."

@stella25. I sincerely hope you find a donor. I think MELDs can be so misleading. I’ve known of very sick people who had fairly low MELDs. Mine was 28 when I received my transplant and about to have an increase.
I never looked for a living donor. My son and daughter both volunteered but I refused him because I felt it would be too much of a disruption to his career but I finally decided to let my daughter (she was a freelancer and could work from here) get tested and she was not able to be a candidate. Back then there were more concerns about donors so I wanted her to get tested just in case things got desperate. Thankfully I was called just in time.
JK