Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

@rosemarya

racing212, Hi, Chuck. I will be happy to call you Chuck🙂
One question - If the appointment has to be cancelled due to the weather, do you know if you will be able to reschedule it soon?

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I wiil try to get it set up for January.

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@racing212

Hi all it's been awhile since I've been here.... I go to st.cloud mn . monday for ct scan to see if the three spotz are still there or have grown and blood work.. Depending on the weather. Expecting up to a foot of snow.

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@racing212, Good Morning and Happy New Year! Did the weather cooperate with your travel for the appointment? Is there any update that you are comfortable to share? What is the next step?

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@rosemarya

@racing212, Good Morning and Happy New Year! Did the weather cooperate with your travel for the appointment? Is there any update that you are comfortable to share? What is the next step?

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The trip was a slow one. Slippery roads. But i made it there and back
I got the results back Tuesday and the blood work was better than last time. And the ct scan showed no evidence of a mass thist time

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@racing212

The trip was a slow one. Slippery roads. But i made it there and back
I got the results back Tuesday and the blood work was better than last time. And the ct scan showed no evidence of a mass thist time

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@racing212, Chuck, This sounds like promising news to me. What kind of follow-up will you need?

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@racing212

The trip was a slow one. Slippery roads. But i made it there and back
I got the results back Tuesday and the blood work was better than last time. And the ct scan showed no evidence of a mass thist time

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@racing212 Chuck, your blood work sounds promising. Where are you currently on the transplant waitlist? I hope you don't have to wait too much longer, it is really a miserable time.
JK

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I want to say thank you to all of the members who are so graciously sharing, asking questions, and supporting other transplant patients and loved ones. I wish I had known you when I was going thru the transplant experience!

I have recently scheduled my appointment for my annual evaluation at Mayo. I can hardly believe that this will be my 11th year since my transplant surgery. In some ways it seems like just yesterday and yet it also feels like a lifetime ago. Every year at this time, I am faced with the memories of my own difficult phase in my own transplant journey that included: being inactivated from the transplant list from mid January 2009 until March 13, 2009; acute kidney failure and dialysis; emergency transport and critical care in regional ICU; medical flight to Mayo Rochester where I found out I needed a kidney transplant in addition to liver transplant; in April 2009 got a simultaneous liver and kidney transplant.
By now, I am familiar with the scheduled tests and protocol procedures, so there is less stress. I chose to share this part of my experience to let you know that anything and everything is possible even when it appears hopeless.

I have spent the greater part of my afternoon viewing the posts in this support group discussion. Wow! I am so amazed at the vast amount of kindness and support that has occurred here. . @frankw54, @jerrydrennan, @calikellyw, @calikellyw, @mego2k, @rodney9999, @christinelouise, @luckonetj, @tr1pol1sue, @danab, @des46893, @jim1208, @flagal22, @livertrex, @wildcat, @benlam11, @tayloryvette, @racing212, @leahd, @skipmarsliver, @tgshomes, @mostlybill, @slslape56, @jws10, @gaylea1, @jeanne5009, @jodeej, @stella25 - Won't you drop in to say, "Hi"?

This is a support group - let's keep it going - What do you want to talk about? How are you getting along? What would you like to ask? What would you like to share?

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@rosemarya

I want to say thank you to all of the members who are so graciously sharing, asking questions, and supporting other transplant patients and loved ones. I wish I had known you when I was going thru the transplant experience!

I have recently scheduled my appointment for my annual evaluation at Mayo. I can hardly believe that this will be my 11th year since my transplant surgery. In some ways it seems like just yesterday and yet it also feels like a lifetime ago. Every year at this time, I am faced with the memories of my own difficult phase in my own transplant journey that included: being inactivated from the transplant list from mid January 2009 until March 13, 2009; acute kidney failure and dialysis; emergency transport and critical care in regional ICU; medical flight to Mayo Rochester where I found out I needed a kidney transplant in addition to liver transplant; in April 2009 got a simultaneous liver and kidney transplant.
By now, I am familiar with the scheduled tests and protocol procedures, so there is less stress. I chose to share this part of my experience to let you know that anything and everything is possible even when it appears hopeless.

I have spent the greater part of my afternoon viewing the posts in this support group discussion. Wow! I am so amazed at the vast amount of kindness and support that has occurred here. . @frankw54, @jerrydrennan, @calikellyw, @calikellyw, @mego2k, @rodney9999, @christinelouise, @luckonetj, @tr1pol1sue, @danab, @des46893, @jim1208, @flagal22, @livertrex, @wildcat, @benlam11, @tayloryvette, @racing212, @leahd, @skipmarsliver, @tgshomes, @mostlybill, @slslape56, @jws10, @gaylea1, @jeanne5009, @jodeej, @stella25 - Won't you drop in to say, "Hi"?

This is a support group - let's keep it going - What do you want to talk about? How are you getting along? What would you like to ask? What would you like to share?

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Congrats on your transplant success !!!! I just celebrated my 10th liver transplant anniversary. Now on the kidney transplant waiting list. I can understand your reflections. It is quite a journey !

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@rosemarya

I want to say thank you to all of the members who are so graciously sharing, asking questions, and supporting other transplant patients and loved ones. I wish I had known you when I was going thru the transplant experience!

I have recently scheduled my appointment for my annual evaluation at Mayo. I can hardly believe that this will be my 11th year since my transplant surgery. In some ways it seems like just yesterday and yet it also feels like a lifetime ago. Every year at this time, I am faced with the memories of my own difficult phase in my own transplant journey that included: being inactivated from the transplant list from mid January 2009 until March 13, 2009; acute kidney failure and dialysis; emergency transport and critical care in regional ICU; medical flight to Mayo Rochester where I found out I needed a kidney transplant in addition to liver transplant; in April 2009 got a simultaneous liver and kidney transplant.
By now, I am familiar with the scheduled tests and protocol procedures, so there is less stress. I chose to share this part of my experience to let you know that anything and everything is possible even when it appears hopeless.

I have spent the greater part of my afternoon viewing the posts in this support group discussion. Wow! I am so amazed at the vast amount of kindness and support that has occurred here. . @frankw54, @jerrydrennan, @calikellyw, @calikellyw, @mego2k, @rodney9999, @christinelouise, @luckonetj, @tr1pol1sue, @danab, @des46893, @jim1208, @flagal22, @livertrex, @wildcat, @benlam11, @tayloryvette, @racing212, @leahd, @skipmarsliver, @tgshomes, @mostlybill, @slslape56, @jws10, @gaylea1, @jeanne5009, @jodeej, @stella25 - Won't you drop in to say, "Hi"?

This is a support group - let's keep it going - What do you want to talk about? How are you getting along? What would you like to ask? What would you like to share?

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Rosemary you are an inspiration to us all. Your support and kindness helped me beyond belief. Pre and post transplant you have been a beacon. I have another ERCP booked for Mar 16 to either remove or replace my bile duct stent. As you know I have had a bad history of ERCPs with the pancreatitis outcomes. In Jan I joined a private gym and contracted a personal trainer and nutritionist. My body is already stronger. Who knew I'd have it in me to regain control of my life and body. You are a true hero to me. Thank you, thank you, thank you. 💚

REPLY
@rosemarya

I want to say thank you to all of the members who are so graciously sharing, asking questions, and supporting other transplant patients and loved ones. I wish I had known you when I was going thru the transplant experience!

I have recently scheduled my appointment for my annual evaluation at Mayo. I can hardly believe that this will be my 11th year since my transplant surgery. In some ways it seems like just yesterday and yet it also feels like a lifetime ago. Every year at this time, I am faced with the memories of my own difficult phase in my own transplant journey that included: being inactivated from the transplant list from mid January 2009 until March 13, 2009; acute kidney failure and dialysis; emergency transport and critical care in regional ICU; medical flight to Mayo Rochester where I found out I needed a kidney transplant in addition to liver transplant; in April 2009 got a simultaneous liver and kidney transplant.
By now, I am familiar with the scheduled tests and protocol procedures, so there is less stress. I chose to share this part of my experience to let you know that anything and everything is possible even when it appears hopeless.

I have spent the greater part of my afternoon viewing the posts in this support group discussion. Wow! I am so amazed at the vast amount of kindness and support that has occurred here. . @frankw54, @jerrydrennan, @calikellyw, @calikellyw, @mego2k, @rodney9999, @christinelouise, @luckonetj, @tr1pol1sue, @danab, @des46893, @jim1208, @flagal22, @livertrex, @wildcat, @benlam11, @tayloryvette, @racing212, @leahd, @skipmarsliver, @tgshomes, @mostlybill, @slslape56, @jws10, @gaylea1, @jeanne5009, @jodeej, @stella25 - Won't you drop in to say, "Hi"?

This is a support group - let's keep it going - What do you want to talk about? How are you getting along? What would you like to ask? What would you like to share?

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Congrats on your 11 year post transplant... I go to mayo march 16th and 17th

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@racing212

Congrats on your 11 year post transplant... I go to mayo march 16th and 17th

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congratulations on longivity i am at three years + 2 TIA strokes.

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