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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)

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@mostlybill

JK, I know, Boston traffic is crazy, but the minute we hit the old 128 leg of 95 it is at a dead stop at certain times. It all backs up at the I-93 junction and the Lowell Connector. At peak traffic it can take close to an hour to move ten miles. Today my first appointment is at 10:00, so we are allowing three hours for an hour and forty minute drive. I hope we get out early enough--after 3:30, we get the traffic the other way.

I met a woman at a Christmas party the other night who had a heart transplant at Mass General. She always take the train in from Dover NH, Pretty smart. She loves Mass General.

I feel at home in Lahey after these past five or so years. I think the world of my surgeons and the transplant nurses. I will be seeing the Nephrologist today as well as the surgeon. I have been making an effort to drink water and limit potassium and salt, so I'll see what the blood work shows. I have my list of questions and intend to ask the kidney doctor about a referral to a nutritionist. There is some question whether this is covered by Medicare, but I think it is. Blood pressure is my biggest question for the kidney doctor. In spite of two BP meds each day, exercise and diet, it remains really high. I never had this issue pre-transplant. I'm almost at four months--at six months some of the meds get dropped. I am especially eager to get rid of Valcyte and prednisone, Both of these cause dizziness, Valcyte can also affect BP I believe. I live and learn and continue to endeavor to live my best life. Best wishes.

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Replies to "JK, I know, Boston traffic is crazy, but the minute we hit the old 128 leg..."

@acid2come I hope the traffic wasn’t too horrendous today. We went to MGH last week for a 3:00 appointment. We left here at 12:45 and I barely made the appointment. My husband dropped me off on Cambridge Street and I walked the remaining short distance. He had to drive a bit further and park and got there a half hour later! The next day I had an appointment with my orthopedic surgeon in Chestnut Hill and faced the same thing and got there just in time. We can often make it to MGH in an hour so that was probably the worst ever. I do love MGH, they have been great there. I feel so fortunate to have such an incredible facility so close by. I’m sure lahey is good too. If not for that doctor I might have had my transplant there.

I’ve never heard of Valcyte but I’m still on a small dose of prednisone and it’s been more than three years. I think I will be starting a BP medicine soon. I needed a cholesterol one too and the doctor thought that was more important and didn’t want me starting two new meds at the same time.
JK