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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
HI JK, I had my transplant at Lahey last August at age 70. I too have a long drive to the hospital for all of my appointments. I dread the traffic and driving after dark. And then there is the winter weather. I am about 98 miles away up in NH. I have had my immunosuppressant changed several times because of various issues. I am starting to feel great with plenty of energy. I am working on coping with the side effects of the drugs which make me a bit restless and uncomfortable. I never had blood pressure or kidney issues before transplant and so far, nothing is helping. I am careful with diet, exercise and take two different kinds of blood pressure meds. I am trying to stay on a low potassium diet which I find hard. I will see the kidney doctor and surgeon on Friday and will raise my concerns.
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@mostlybill That's too bad that changing the immunosuppressants that you are taking didn't help as it did for me. Are you drinking a lot of water as I was advised to do? Those two things did it for me, thankfully.
I also did not have a blood pressure problem before transplant although I had a slightly elevated BP back around 2001. I have since read that it is not uncommon to have a BP problem after transplant, presumably from the immunosuppressants. Now that my kidneys are under control the worst problem is that the prednisone apparently caused a lot of bone thinning problems when I was on a high dose of it. Now I am on a very small dose.
Regarding the appointments, I always schedule mine in the late morning or early afternoon so I can get in and out of Boston in between the rush hours. At least you don't have Boston traffic to deal with going to Lahey. I may have mentioned, I did go to Lahey first but neither my husband nor I liked the doctor we saw so I chose to do my own research and find a different place. My PCP had suggested Lahey. They do have a nice facility there.
JK