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Liver transplant - Let's support each other

Transplants | Last Active: 6 days ago | Replies (1606)

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@contentandwell

Hi @slslape56 I too welcome you to Connect. I am 3 years post-transplant (September 2016). Things have been great for me ever since also.
Age does definitely bring on many medical problems. I am now 72 and it seems as if multiple things are popping up. I agree, it's essential to have good doctors. I had my transplant at Mass General in Boston and I rely on them for virtually everything except my PCP due to distance -- I am about 55 miles from Boston and during the day it can take two hours to get there. I have lab work done every other month and when my creatinine was high my transplant doctor changed my immunosuppressant and told me to drink a lot of water, or other fluid -- 60 - 80 ounces a day. Originally they said 80 - 100 ounces but it's been so stable now for so long that I can cut back a bit. To what is the doctor attributing your decline in kidney function?
JK

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Replies to "Hi @slslape56 I too welcome you to Connect. I am 3 years post-transplant (September 2016). Things..."

HI JK, I had my transplant at Lahey last August at age 70. I too have a long drive to the hospital for all of my appointments. I dread the traffic and driving after dark. And then there is the winter weather. I am about 98 miles away up in NH. I have had my immunosuppressant changed several times because of various issues. I am starting to feel great with plenty of energy. I am working on coping with the side effects of the drugs which make me a bit restless and uncomfortable. I never had blood pressure or kidney issues before transplant and so far, nothing is helping. I am careful with diet, exercise and take two different kinds of blood pressure meds. I am trying to stay on a low potassium diet which I find hard. I will see the kidney doctor and surgeon on Friday and will raise my concerns.