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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)

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@rowdyramsey

Thank u for ur kind words once again. Well, 2 things come to mind that I need from the doctor. One,what has happened to my eating. I’m never hungry and always nauseated. I eat about !00-max 500 calories a day. I can’t stop the weight loss. I feel like I’m disappearing! No doctor has helped with this. Oh,I has a colonoscopy 2 weeks ago. He said my nausea could be from excessive scar tissue. He called yesterday and said he needed another test done on me. He said he needs to investigate my stomach.(I also need someone to go and listen with me cause I forget or don’t understand. He already did an endoscope where they put a t.v. down my essopegus. Spelled wrong!. Anyway,didn’t that test check out the stomach already. I’m not sure what the test is called but I’m sure I will get the info soon. The second thing is I want them to run tests on my memory! Somehow,I don’t know how,I truly believe I’m suffering from permanent brain damage due to the HE. We will see what happens on the 26th when I see my liver doctor. I don’t even know how often I should have my blood drawn. I go 6-7 months without testing and no one has told me otherwise. They suck at following up. This appointment is with the liver team at University. After this check up I might just switch to Hopkins. Can u think of anything else I should tell them or ask them?

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Replies to "Thank u for ur kind words once again. Well, 2 things come to mind that I..."

@rowdyramsey You have come up with some great things to ask. May I suggest you write all this down, don't rely on your memory! I know for me, I get wrapped up in the appt and then forget to address something, or don't hear what dr is saying. And write down their answers to you. Be sure you can take someone with you so it will help you get all the information exchanged. Can you handle something like Ensure products, that will give you some nutrition? We will be waiting to hear how it goes for you next week.
Ginger