Good article, @rosemarya Thanks for the link. I do have fatigue pretty much always. I attribute it to inadequate sleep since I get up so many times during the night. My husband thinks it's too much exercise but I think I am more tired when I don't get exercise. I mentioned to my PCP not long ago that I was tired all the time and frequently took a nap in the afternoon. His response was "what's wrong with that?".
Prior to transplant I definitely needed naps. At one point it was so bad I would have to stop and take a break on my way up the stairs and then I discovered that was due to my hemoglobin and hematocrit counts being extremely low, and I had gotten somewhat anemic. I know I was extremely tired initially following transplant too. I think, for me anyway, that anytime my body is recuperating or fighting something off, I do get extremely tired. My recent fracture left me tired a lot.
I went to my club this morning and did about an hour and 15 minutes in the water and right now I am fighting off the desire to go upstairs and take a nap.

@rowdyramsey Johns Hopkins is right up there with Mayo and Mass General in being well known. I believe it, along with those two and Cleveland Clinic, is one of the top four hospitals in the country. Have you gone there? If you are not satisfied with your care at U Maryland I would definitely advise you to go there for a consult. Your problems are somewhat unique and as non-medical people, we really cannot advise you beyond that suggestion to get another opinion. I hope that when you have your appointment on the 26th it will be fruitful.
JK