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Liver transplant - Let's support each other
Transplants | Last Active: 6 hours ago | Replies (1596)Comment receiving replies
I was treated at the University of Maryland. That’s where our shock trauma is located. I also had the opportunity to go to John Hopkins. Most people out of state have heard of Hopkins. Have u? My post treatment was great the first 8 months maybe. Then it went to hell.I never hardly hear from them. I do have an appointment with the liver people on November 26th. Wonder if they will say or do anything about what’s happening to me. I doubt it highly. Will let u know!
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@rowdyramsey, I will be thinking about you next week when you meet with the liver people. Actually, I am thinking about you now as I imagine that you are anxiously awaiting and planning for the appointment.
-Do you have someone who can go with you to the appointment? I find that I need an extra set of ears to help me remember and understand what the doctor says.
-Do you have any questions that you want to ask? It helps me to make a written list ahead of time, and then I list them in the order of importance to me, just in case time runs out.
-In your response you mentioned that you "wonder if they will say or do anything about what’s happening to me". I would not leave this important information to chance. Please take the information with you, because they need this history amd medications involved. in order to better address your current liver health.
What questions do you have as you prepare? How can I and the members of this group help you to prepare for this visit?