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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@rowdyramsey I have been on just about every narcotic (hydrocodone, oxycodone, oxycontin, Dilaudid) at some point in time for knee replacements, the liver transplant, and a couple of other painful things but never for as long as you were. I was on either oxy or hydrocodone for a few months following my first TKR but for some reason I have so far been able to discontinue narcotics without a problem. Part of that may be that I have always been very conservative in how much I took.
That's good that you, yourself, took the initiative to discontinue the drugs, that does seem like an excessive amount and I suspect almost anyone would get dependent on them if they were taking them for that long.
You must be feeling much better now, I am happy for you, and impressed that you took care of this yourself.
@racing212 It seems a lot of people complain of fatigue. I have been having a problem with that recently but I don't think it is related to my liver transplant, I am pretty sure it is related to simply not sleeping very well. Are you able to get a good night's sleep? I often wake up and am exhausted still but can't fall back to sleep. I will get up, have breakfast and then after doing a few things return to bed for a nap. I can do that because I am retired.
JK
Replies to "@rowdyramsey I have been on just about every narcotic (hydrocodone, oxycodone, oxycontin, Dilaudid) at some point..."
Thank you for your kind words! Yeah I was way over prescribed. By the end of it I could take 20 .4 Dilaudid at one time and it didn’t even touch me! I knew . They actually threw me off the transplant list because they said the pain would be to great cause they could Not give me enough pain meds to comfort me because my tolerance was so high. They alone where responsible for medicating me because I was living at the hospital on a permanent basis. They gave me Dilaudid every 4 hrs along with Atalanta and morphine every 3. The doctor called my mom and said I had lapsed into a coma and this was the end. She came immediately and found me totally awake and out of my mom. My mom caused a big scene(she is a retired RN. I wasent in any coma<they had drugged me so bad that I lost consciousness. My mom went nuts on them. They overly medicated me and if I wasent under HE,I was a zombie stoned out of my mind! They put me back on the list 2 months later
Unfortunately , I have developed an eating disorder in which my life is at stake once again. Problem is I cant eat. I’m nauseated all the time and can’t get food down because of it. It’s not like I don’t eat cause I think I’m fat. I don’t eat because I have no appetite.. I’m seeing a doctor and a psychiatrist. About 2 months now. They have done nothing!!i go every other week and not one thing is talked about of any importance. It’s a joke!
Fatigue is always been a problem for me. It takes me 2 hours in the morning just to feel like I can move. It’s ridiculous. I have no problem with sleep. I have been on Trazadone since the transplant. I go to sleep within 20 min.<don’t wake up and I can sleep 10-11 hours a day! I am still disabled so I’m home all the time.Are you still disabled from your transplant? Anyone?
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It's gotten worse since my liver don't work right any more. I also had leukemia that also wore me out