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Liver transplant - Let's support each other

Transplants | Last Active: 12 hours ago | Replies (1567)

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@rowdyramsey

Hello fellow liver patients! If your alive...it’s a great day for celebrating!! I have a question for everyone! What was ur opiate medication? I’m trying to see if anyone can relate to me. In 2004 they removed a tumor on my remaining ovary. I only had one cause I had ovarian cancer at 19 yrs. old. So,I was to have my one ovary removed(hysterectomy) so the cancer Dosent come back. So in 2004 they reluctantly did surgery ( hysterectomy) they considered me very high risk for surgery. My liver was so far gone,this is the first time my liver was mentioned. The doc did the surgery and then relayed the condition of my liver to me and family. He said it was a big bag of peanuts! The liver that is. Anyway they put me on narcotics stating after surgery. They kept me on a daily stream of Dilaudid. The point 4s! I was on them daily till my transplant for 2 straight years. Then<get this,they continued to give me every month 180 point 4 dilaudids from transplant till last year. So from 2014 till 2018,I was on this narcotic daily. Never missed a day. That is daily use of the strongest narcotics out there. I also was on them every 4-6 hrs for a solid 5 years. Four yrs. after transplant I was still taking the same amount. I think I was over prescribed!! I finally took matters in my own hands. I refused anymore scripts and had to get on a methadone 30 day detox program. That’s how I got off the narcotics that were prescribed every month! Have any of you had this problem either now or before?

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Replies to "Hello fellow liver patients! If your alive...it’s a great day for celebrating!! I have a question..."

@rowdyramsey I have been on just about every narcotic (hydrocodone, oxycodone, oxycontin, Dilaudid) at some point in time for knee replacements, the liver transplant, and a couple of other painful things but never for as long as you were. I was on either oxy or hydrocodone for a few months following my first TKR but for some reason I have so far been able to discontinue narcotics without a problem. Part of that may be that I have always been very conservative in how much I took.
That's good that you, yourself, took the initiative to discontinue the drugs, that does seem like an excessive amount and I suspect almost anyone would get dependent on them if they were taking them for that long.
You must be feeling much better now, I am happy for you, and impressed that you took care of this yourself.

@racing212 It seems a lot of people complain of fatigue. I have been having a problem with that recently but I don't think it is related to my liver transplant, I am pretty sure it is related to simply not sleeping very well. Are you able to get a good night's sleep? I often wake up and am exhausted still but can't fall back to sleep. I will get up, have breakfast and then after doing a few things return to bed for a nap. I can do that because I am retired.
JK