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Liver transplant - Let's support each other

Transplants | Last Active: May 16 6:52pm | Replies (1572)

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@mostlybill

I see the surgeon on Thursday to discuss getting off the prednisone. Yay. The trouble is that none of this is that simple.

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Replies to "I see the surgeon on Thursday to discuss getting off the prednisone. Yay. The trouble is..."

@mostlybill, I'll be thinking of you.
You are absolutely correct: None of this is simple! Remember that we are tough! We are not alone here!
I look forward to hearing from you after you see the doctor. I hope you get a good check-up and a report of a happy liver.

@mostlybill I had not really noticed a problem from taking prednisone, until I was diagnosed with osteoporosis and discovered that prednisone contributes to that. Now I hope I will get off in the not too distant future. I asked about it at my three year appointment last month but they are not ready to discontinue it yet. I think my transplant center, Mass General, is fairly conservative. Looking forward to hearing if your surgeon approves discontinuing prednisone. I hope so since you are having so many effects from it.

@rowdyramsey Ramona, you certainly did have to put up with a lot more than many of us prior to transplant. Did you say that your memory problems did not start immediately after transplant though? If so then I think they may need to try to find a different cause. The problems are there, but it is possible that the cause is not what you are thinking it is. The end result is the same of course, it sounds like it would be impossible for you to hold down a full time job. I do hope that you can get some type of disability and also that you might be able to find some job to do that would give you some focus, assuming that is allowed when you are on disability. I personally always found working gave me a boost in how I felt and in focus.
JK