Connect
← Return to Liver transplant - Let's support each other
Discussion
Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@flagal22 I recall reading that MELD can measure above 40 but it is not at all typical so they generally give that as the top of the range. Perhaps the new way to calculate MELD has made those high numbers more common. You were so lucky to have only had one HE episode. Did you also modify your diet? If I recall correctly, you did not wait long for a transplant, right?
I am really beginning to wonder if my short term memory could be from my HE episodes. I think some of mine is simply not paying enough attention, but that would not apply to things I read, or things I say. My son gets exasperated with me when I tell him something, saying I've told him that 100 times. Obviously he exaggerates but I know I do tell him things more than once. I think it's simply because I don't remember if I told him or someone else!
JK
Replies to "@flagal22 I recall reading that MELD can measure above 40 but it is not at all..."
Connect
If u have seen any of my posts,u would know I’m 100% behind u about HE. I’m the one who has a disability case trying to prove that my instant and short term memory loss is due to permanent brain damage caused from excessive and long term HE episodes. My memory has gotten soo bad! Mostly it’s instant memory loss. Like I forget what I’m saying,can’t remember to turn the stove off,things like that. I suffered from HE for almost 2 years straight. It was daily HE episodes. My ammonia levels were 190+. I lived on lactolose for a year and a half. Every 3 hrs I had to drink a dose. I crapped my brains out for over a year everyday. I also was struck down with fluid every 2 weeks. I had a standing order to tap my abdomen every 12 days. They pulled ten thousand cc off. That’s 6 2liter bottles! Image that ,6 2liters of coke. Got that vision? Now,instead of coke replace it with my fluid. That’s how much they got for about a year ,tapping me every 12 days. Get this though,I was never yellow. Not my eyes,not my skin,nothing! I was never put on 2 drugs that I hear most of u were on. Something they gave you or the others to help with HE. It’s not lactolose either. It’s called something else. I’m just thinking to myself,why wasent I put on it since I suffered so bad with HE. Do u know what I’m talking about? Anybody?