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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@contentandwell

@rowdyramsey I just went back to read your prior posts. It sounds as if these problems didn't start immediately after transplant? I saw a response I had before that I still believe - I have no medical training but I think if they started a couple of years after your transplant then the problems are probably not related to HE episodes. Did you have any of these problems immediately after transplant?
That's good that you are seeing a neurologist. I don't know anything about brain scans but hopefully, if you are unable to hold a job they will be able to help you get disability no matter the cause. I am also not familiar with disability. If you are on disability are you allowed to hold a part-time job? I would think that could help you with depression, getting out and interacting and doing something, even if the part-time job is something fairly easy.
Try to eat something. When I can't eat, which is pretty rare, I find that toast does go down well, maybe with a little ginger ale. You do need to keep your energy up and if you don't eat you will be even worse. You mention a son. Does he of anyone live with you to give you some help?
When will you be having brain scans? I hope you will let us know how they turn out.
JK

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Replies to "@rowdyramsey I just went back to read your prior posts. It sounds as if these problems..."

Not sure if I responded already to this. If I have ,sorry. It’s my memory. I can’t remember if I responded or not. Crap like that happens all the time. Anyway to answer your first question. My loss of memory started soon after the transplant. I gave myself almost a year for recovery and during that first year or towards the end of the year,I began noticing that I wasent getting any better with my memory. It just got worse. So,yes,I noticed it right away. Once the “fog” lifted and my body was got better,I noticed my mind and my thinking had drastically changed. I would love to keep posting my updates because I believe in what I’m doing and saying. I do believe that long lasting HE will leave “brain damage” permanently. Depending on the severity of your experience with HE.