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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
I have started seeing a neurologist. They intend to do certain brain scans etc... hepetology said it’s possible that I have suffered brain damage. The court I’m talking about is disability. They want to deny,deny,deny. They fail to look at the problems I have now. They just say,oh her liver is better so send her to work 40 hours a week. It takes me 3 hours to get enough energy to just start the day. My memory constantly defies me. The doctor said I have severe depression and am forming a eating disorder. A restrictive eating disorder is what they said. I’m not hungry and haven’t been able to eat. I feel I am unable to swallow food sometimes. I eat an apple everyday and drink one ice mocha in the morning/afternoon. I had a colonoscopy on Tuesday and I haven’t been able to eat since. It’s only been several days. Normally I throw something else in their to eat,like a turkey sandwich. I don’t know if I’m doing it on purpose or if their is something medically wrong with me. I do have doctors checking on me and following me. I’ve been completely honest with the doctors. Even an eating disorder can’t get you disability. Guess they will approve me when I’m dead!
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@rowdyramsey I just went back to read your prior posts. It sounds as if these problems didn't start immediately after transplant? I saw a response I had before that I still believe - I have no medical training but I think if they started a couple of years after your transplant then the problems are probably not related to HE episodes. Did you have any of these problems immediately after transplant?
That's good that you are seeing a neurologist. I don't know anything about brain scans but hopefully, if you are unable to hold a job they will be able to help you get disability no matter the cause. I am also not familiar with disability. If you are on disability are you allowed to hold a part-time job? I would think that could help you with depression, getting out and interacting and doing something, even if the part-time job is something fairly easy.
Try to eat something. When I can't eat, which is pretty rare, I find that toast does go down well, maybe with a little ginger ale. You do need to keep your energy up and if you don't eat you will be even worse. You mention a son. Does he of anyone live with you to give you some help?
When will you be having brain scans? I hope you will let us know how they turn out.
JK