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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@rowdyramsey

I have also had a problem withHE and believe I’ve suffered permanent brain damage from it. Just wanted to say that I have enjoyed reading your posts and responses. I can relate oh so well! Thanks for sharing!

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Replies to "I have also had a problem withHE and believe I’ve suffered permanent brain damage from it...."

@rowdy Ramsey I am very sorry that HE may have given you permanent brain damage. I have heard that can happen but if it did for me it was fairly minor - some forgetfulness. Is there any therapy that might help with it? There is so much they can do these days and they are always finding new therapies. Maybe a really good neurologist could help.

You have mentioned having a case pending. Who would you be suing? It sounds as if all that could be done, was. You were taking large amounts of lactulose to try to minimize HE, and being drained of fluid regularly. I did not have significant fluid build-up until shortly before my transplant, I did have edema when I traveled, but never needed to have fluid drained. I was on two diuretics.
JK