Hi @racing212 So how are you doing a year out? What is your MELD now? I was on the list for almost a year and a half. I expected to be waiting at least two more months but a transplant came through earlier than anticipated. I was at MELD 28 at that point but in another couple of weeks I am sure that would have increased to 30 or 31.
Are you feeling well? I believe you had mentioned being on lactulose and xifaxan. Are your HE episodes fairly well controlled now? Mine were pretty well controlled when I was taking xifaxan but as my conditioned worsened they did resume, but not as frequently. They did add lactulose back in to help even more.
I went back and checked your prior posts and see you go to Mayo in Rochester. Is that far from you? I believe if it is that when you are getting very close they will have you staying there so you will be there when a compatible liver becomes available. My transplant was at Mass General in Boston so that's only about 55 miles down the highway and they were able to just call me when they had a liver.
Try to not get discouraged, it will happen. We will all rejoice with you when it does. Please keep us up to date on how you are doing.
JK

@racing212 I was on the list 18 months and my MELD was just over 30. It was an intolerable wait and I had every symptom imaginable while waiting. The call did come though and I'm so appreciative of this group of getting me through it. My one year anniversary is at the end of this month.