Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

jbilton | @jbilton | Sep 30, 2019

they were giving them today at Mayo Clinic!

Rosemary, Volunteer Mentor | @rosemarya | Oct 1, 2019

In reply to @jbilton "they were giving them today at Mayo Clinic!" + (show)

@jbilton, That is good news! And a good way to enter into the month of October.
My experience is that Mayo is extremely proactive about preventive care both before and after organ transplants. I have never been on a Mayo campus during the flu shot season, however when I am there, they do make sure that I am up to date on all immunizations and preventive screenings. My husband did not take the flu vaccine until my transplant team told him that he needed to get it for my protection.
I am curious - Did you go there just for the shot? or Did you get lucky with the timing of an appointment?

Rosemary, Volunteer Mentor | @rosemarya | Oct 1, 2019

In reply to @tayloryvette "Thanks and yes. I struggle with even wanting to eat sometimes. I only weigh 125. I..." + (show)

@tayloryvette, I am concerned about how your body being affected by your liver disease. Have you made any progress with getting transferred to Mayo as you mentioned?

livertrex | @livertrex | Oct 1, 2019

In reply to @rosemarya "@tayloryvette, I am concerned about how your body being affected by your liver disease. Have you..." + (show)

I missed my meds at 8am. It is a 11am. I wonder if I should still take
them?

Rosemary, Volunteer Mentor | @rosemarya | Oct 1, 2019

In reply to @jim1208 "Yes maam I am staying overnight. Have to, Mayo is 140 miles from home. I get..." + (show)

@jim1208 Hi, Jim. I like to check up on members in the transplant group. I would like to say that I hope that you are moving forward each day. Have you been to Mayo recently? How often do you have scheduled appointments?

Rosemary, Volunteer Mentor | @rosemarya | Oct 1, 2019

In reply to @livertrex "I missed my meds at 8am. It is a 11am. I wonder if I should still..." + (show)

@livertrex
My transplant center gave me some guidelines, but even with those I have called my Mayo Pharmacist for instructions about what to do Why dont you call the transplant pharmacy,if you use one, ot your transplant center/nurse.
This happens to others, too. It has happened to me.
Let me know if this works.

livertrex | @livertrex | Oct 1, 2019

In reply to @rosemarya "@livertrex My transplant center gave me some guidelines, but even with those I have called my..." + (show)

Thanks, I called them waiting for a call back. But in the meantime I
looked up on the internet. And I determined that it's okay as long as I
don't take a double dose at one time. That applies to all the drugs I'm on.
Thanks very much

Rosemary, Volunteer Mentor | @rosemarya | Oct 1, 2019

It sounds like you are only 3 hrs late. The return call might suggest a small time adjustment-it not. I am certainly not qualified to make that decision for you.
Let me know what they say when they call.
I hope you enjoy the rest of your day.

livertrex | @livertrex | Oct 1, 2019

In reply to @rosemarya "It sounds like you are only 3 hrs late. The return call might suggest a small..." + (show)

Thanks

livertrex | @livertrex | Oct 1, 2019

In reply to @rosemarya "It sounds like you are only 3 hrs late. The return call might suggest a small..." + (show)

They called me back, and everything's fine, I was correct in what I had
interpreted on the internet and as long as I don't double up the dose.
Thanks for your help