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DiscussionLiver transplant - Let's support each other
Transplants | Last Active: Nov 13 8:00pm | Replies (1617)Comment receiving replies
Replies to "@rosmarya While a lot of you transplant folks tell of pre transplant horrors, I seem to..."
@jeanne5009 It sounds as if you are doing somewhat better than you were during the summer, so that's a positive thing. Hopefully things will continue to improve. It's so frustrating to not get enough sleep though. I haven't been too bad most nights recently but when I go through periods of sleepless nights I am really miserable.
By the way, I have read that higher doses of melatonin do tend to cause nightmares. I never take more than 3 mg. There is another medication out there now that has other ingredients with the melatonin but the other two are herbal and things that I cannot take being post-transplant. When I asked them about it at the transplant department they said no, but suggested that I take a second dose of melatonin in the middle of the night if I was awake. You are supposed to take it a couple of hours before going to bed so I did try that the other night (most nights I don't remember until I am going to bed) and then when I woke up about an hour and a half after going to bed I took another. I think it did help, and since a large amount was not in my system at once I didn't have really weird dreams -- I do tend to get more dreams than usual though. Some information says it is not really an effective remedy for insomnia. It may not be, I'm not sure. I do not take it nightly, just when I go to bed thinking I will have a problem.
You must be so frustrated to be decompensated but not yet have a high enough MELD to be on the transplant list. Is that due to the changes in how they evaluate it now?
Monday was my third "transplantiversary". I can't believe it's been three years. I thank God for every day I have been given. We went out to dinner to celebrate.
JK