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Liver transplant - Let's support each other

Transplants | Last Active: 5 days ago | Replies (1568)

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@flagal22

@rosemarya In December 2017 my PCP noticed by bloodwork indicated a fatty liver issue and requested I see a Gastroenterologist. I did beginning in January of 2018. He had me get a colonoscopy and endoscopy. I had polyps removed and varices in my colon and esophagus. In April, I had tests and a liver biopsy. I did not have liver cancer but was diagnosed with end stage cirrhosis of the liver, NASH in mid-May 2018. My MELD was 10 at that time. My health was pretty good until the end of October. It went downhill quickly. My transplant was on February 2nd of 2019. I wasn’t listed until the end of December my 3rd hospitalization in 2 months. By then I completed a left heart cath, a right heart cath and a mammogram required by my Mayo Doctors. I was considered “deferred” until then. When I look back in time, the most pronounced symptoms were fatigue and memory issues. I was 63 years old at transplant.

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Replies to "@rosemarya In December 2017 my PCP noticed by bloodwork indicated a fatty liver issue and requested..."

@flagal22 Your symptoms (fatigue, shaky hands, leg cramps). are so similar to what mine were, except for memory issues although I did have HE episodes. The last MELD I knew was 28 but it was due to be increased and I had gone downhill quickly in the 6 or so weeks prior to transplant.
I had been listed much earlier, perhaps due to having malignant lesions in my liver that were ablated.
JK

How fortunate that you got the help you needed. My story is similar..my Meld is only 8 and Mayo watches me....like a hawk! What was your turning point? Im waiting but I really havent changed...or it is silently creeping up on me.
I will be 69 years old next week..what happens if I stay this way til 73 and then it suddenly falls apart? Will I be too old??
What do you think??