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Liver transplant - Let's support each other

Transplants | Last Active: 1 day ago | Replies (1617)

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@flagal22

@craiger I had a liver transplant in February of 2019 at the Mayo Clinic in Jacksonville. My pre-transplant symptoms were extreme fatigue, very weak leg muscles, hand shaking, trouble with my short term memory and leg cramps. I was always very cold all of the time. I did not have shoulder pain. I was hospitalized for hepatic encephalopathy once in July of 2018. Last fall I began to have ascites with paracentisis once a week. I also had kidney failure and was hospitalized 3 times from November to the end of January. The last weeks before my transplant I had a terrible time eating anything and mostly ate soup. My MELD was 44 and increased to 47 the day I was readmitted to Mayo. I received the transplant that night. I did not know a MELD could go that high until meeting 2 liver transplant patients while waiting for an appointment. NASH was my diagnosis. I wish you well!

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Replies to "@craiger I had a liver transplant in February of 2019 at the Mayo Clinic in Jacksonville...."

@flagal22, I also didn't know that theMELD could go thart high. I was inactivated from the list for a while, and also in ICU in critical condition (potential hospice care) so there were no MELD's recorded. It was 36 when I transplanted.

When did you learn of your NASH diagnosis? Did you have early mild symptoms? Or was it discovered during another health screening?