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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
I too am a pre-liver transplant candidate and have just as many questions, however, I wanted to introduce myself. Taylor is my nick name, I live in very rural part of Michigan with my husband, a dog and a cat. Now a Real Estate Agent, I was a Restaurant/Bar owner and in the business for 30 years. . Just never thought Liver Disease would slowly creep in and take over my body without feeling or knowing a thing. Scary! I am in my 4th year with end-stage and getting more and more scared. My meld score went from a 16 down to a 10, 2 years ago, however I am scheduled for a current assessment and labs to determine if it has gone back up. My symptoms slowly returning are telling me to get the transplant process moving. Waiting on a number is insane.
Replies to "I too am a pre-liver transplant candidate and have just as many questions, however, I wanted..."
Tayloryvette, Taylor, I am sorry that you are going thru this miserable time. Are you currently under the care of a liver specialist? What is the diagnosis for your liver failure?
Hi Taylor
Please try not to be too scared. I, too, lived in a rural area with my husband and our animals; we had a busy hotel an , yes, liver disease, can creep up on you especially when you are so busy and distracted all the time. I was ill for four years without realising what was wrong until the physical symptoms became so bad that i sought help from my GP. After that, I was in the hands of my consultants and hospital who were wonderful.
I had my transplant five years ago and I feel as if I have a whole new life. I am on minimal medication and, honestly, some days I think it was all a dream. It was also a good learning experience is so many ways so it's not all negative by any means. I have a better life now and I value that life more than ever.
I know that I am in the unusual position of having no financial worries as health care here in Scotland is completely free. I am so sad when I hear the stories on this wonderful forum about people struggling to pay for care and medication.
Please be assured that members of this forum will give you all the help and advice you need. I wish I had known about it when I had my own transplant. There is a wonderful life waiting for you after your transplant.
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Hi and keep strong. I'm a post transplant patient. Are you having any problem with fluid build up? I sure did. Talk to your Dr's. They can petition you to get higher up the transplant list based on your situation.