@CHRSTINELOUISE, Six months in the the hospital must have been quite a trial and then afterwards as well. I hope you are doing well now. Transplant experiences are so different. It's hard to compare cases. I had a rejection scare three days after discharge that put me back in the hospital for three days on IV TACROLIMUS. I am currently 13 months +/- post OP. My Transplant clinic Nurse lowered my Magnesium to 200 mg. Twice a day, and wanted to discontinue Urso, but the doctor wanted to stay with the protocol. I wish you all the best. My hospital was selected for me on a first bed avialable protocol. I did how ever end up at my first choice.Tim

@christinelouise I am not sure of exactly what you mean. I was in a hospital a number of times pre-transplant, for short stays. A few hospitalizations were due to HE episodes, and then a couple were for other problems, like very low blood counts -- hemoglobin and hematocrit. Those numbers were so low that the doctor at my local ER said I could have gone into cardiac arrest. I was sent by ambulance to Mass General and had a few transfusions which solved the problem.
I was only Mass General for six days following my transplant. I'm sorry that you were in for so long, what was the cause of that? I can't imagine being in a hospital for six months. When was your transplant and how are you now?
My experience was very positive. I recovered amazingly quickly and have felt great ever since. I feel very blessed to have been given this second chance at life.

@luckonetj Having a potential rejection must have been scary. I am glad you are doing well now. I am thankful that my new liver and I have gotten along well right from the start. The only problem I have had was that tacrolimus was causing my creatinine to go high so first, they had me drinking 80 - 100 ounces of fluid a day. That didn't have the desired results so they then changed my immunosuppressant to sirolimus. That has worked out well. I do still drink all of that water.
I have never heard of a hospital being selected for a patient. What state are you in? My transplant was at Mass General and from what I know the patient chooses the hospital where they want to be listed. There are four hospitals in MA that do adult liver transplants, two in Boston, one in Burlington, and one in Worcester.
JK