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Liver transplant - Let's support each other

Transplants | Last Active: 20 hours ago | Replies (1623)

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@benlam11

I had my Liver, Kidney transplant 4 weeks ago and in the past week I've become very light-headed after walking 100' indoors. MAYO needs to do some checking, especially since I fell while using a walker. I'ts just like for a few seconds every bone in my body disappeared while I never got dizzy or shaky and was able to continue a conversation from my new floor view. I'm now stuck in a wheelchair anytime I go more than 100'. If anyone else has been though this, please advise. The MAYO in Phoenix also seems to have a bedsore problem as several people I've spoken with (all multiple organ transplants) seem to have this same problem. And after asking for a week - while in the Hospital Bed - it was largely ignored. While the Hospital is incredible some of the auxiliary patient support systems (scheduling) are not at the level as the rest of the Hospital.

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Replies to "I had my Liver, Kidney transplant 4 weeks ago and in the past week I've become..."

@benlam11 Congratulations on your transplant, it's such a relief to be on the other side.

Did you have any mobility problems prior to transplant? Your fall sounds very unusual. What did your doctor say about it?

I have not heard of people getting bedsores in the hospital but I am not at Mayo. Were you able to get up and be somewhat mobile while in the hospital, and how long were you inpatient?

@wildcat The dreaded lactulose! We make the best of it. My daughter had a way of pronouncing it in a funny sing-song way to get me to laugh, and after my transplant, while in the hospital, if I complained of any discomfort my husband would exclaim "NO MORE LACTULOSE" to give me something to laugh about.
JK