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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@gaylea1

I went into a hepatic encephlalopathic coma that kept me in hospital for a month. I was in and out of consciousness the whole time. It took 2 months to remeber the day of the week, the date and the month. I forgot my address, phone number and all banking and personal accounts. Luckily i had my children as my Power of Attorneys for property already in place. I still can't recall anything about my stay in the hospital during that time. Apparently my life was on the line touch and go for the first few weeks. My kids were preparing for the worst every day. I have extreme feelings of guilt that they had to go through that. The good news is that I receved my liver November 28 2018. I am so grateful every single day.
Note: Take your lactulose if prescribed to avoid an HE episode!

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Replies to "I went into a hepatic encephlalopathic coma that kept me in hospital for a month. I..."

@gaylea1 That's a long spell in the hospital; for HE. I was in a few times for two or three days. Lactulose definitely helps, but xifaxan helped me even more. Taking that I went almost a year with no HE episodes. When I did have one again they said it was because my liver was getting worse and I had resume taking lactulose.
When I got close to my transplant things really went downhill and both my husband and my sister were prepared for the worse. My kids live away and were not aware of how bad I was.
JK