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Liver transplant - Let's support each other
Transplants | Last Active: 18 hours ago | Replies (1623)Comment receiving replies
Yes, I was very fatigued for over a year before I was diagnosed with end stage liver cirrhosis (NASH) and did not realize why. I was diagnosed in May of 2018. My MELD score was 10 in September 2018. I did have an episode of hepatic encephalopathy (was not in a very coherent state one morning) and was hospitalized for about a day and a half. It was due to a high ammonia level in my blood. By December 2018 I was admitted to the Mayo Clinic in Florida with a MELD of 39 and in kidney failure. My MELD was brought down to 34 and the kidneys improved and I was listed at that time. My health declined very rapidly after the 1st of the year and with MELD of 40+ I received my transplant the beginning of February. I know it is difficult waiting and wondering when will I get a transplant.
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I went into a hepatic encephlalopathic coma that kept me in hospital for a month. I was in and out of consciousness the whole time. It took 2 months to remeber the day of the week, the date and the month. I forgot my address, phone number and all banking and personal accounts. Luckily i had my children as my Power of Attorneys for property already in place. I still can't recall anything about my stay in the hospital during that time. Apparently my life was on the line touch and go for the first few weeks. My kids were preparing for the worst every day. I have extreme feelings of guilt that they had to go through that. The good news is that I receved my liver November 28 2018. I am so grateful every single day.
Note: Take your lactulose if prescribed to avoid an HE episode!
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Jim, that waite from December 18 to February must have been tough. All is good now, I hope!