Jim,
I was extremely ill for 6 months with a meld score of 27 and above. My Family doctor asked if I wanted to go on disability/ssI but didn't for personal reasons.
I received my liver by way of an emergency Transplant at Meld 40+ when not occupied I would rest at home. My family doctor shared that I had 6 months tops until a transplant was needed. Other than that sobering bit of news I learned all thing Transplant on my own and with the help of the conversations I had with a liver Surgeon once, and incidental conversations I had with Nurses during parasynthesis. Once I was transferred to the transplant hospital the all the services were available to me including Amy my Transplant Social worker, Leslie my Transplant coordinator, Dr. Kim and Nessin, Toto and Klein and Brook and Vesna post op Transplant. All totally professional and caring to whom I remain grateful to this day. I hope you have the same experience that I have had with your team