Yes I can relate. I was light headed and dizzy most of the time but several other symptoms were a lot worse. My MELD was 34 when i was 16 months on wait list. I received my liver 17 months in from being on the wait list. I was very ill the year prior to diagnosis. My transplant was Nov 28 2018. I'm still light headed but thank goodness the worst symptoms are all gone.

Yes, I was very fatigued for over a year before I was diagnosed with end stage liver cirrhosis (NASH) and did not realize why. I was diagnosed in May of 2018. My MELD score was 10 in September 2018. I did have an episode of hepatic encephalopathy (was not in a very coherent state one morning) and was hospitalized for about a day and a half. It was due to a high ammonia level in my blood. By December 2018 I was admitted to the Mayo Clinic in Florida with a MELD of 39 and in kidney failure. My MELD was brought down to 34 and the kidneys improved and I was listed at that time. My health declined very rapidly after the 1st of the year and with MELD of 40+ I received my transplant the beginning of February. I know it is difficult waiting and wondering when will I get a transplant.

@jim1208
I’m at Mayo Rochester. I just started year three on the list. My MELD has been all over the place from my current 11 to 26. At my last check up my doctor stopped my driving due to “overt signs” of Encephalopathy. I have been on medical disability through my employer since January 2nd. Luckily I live in the twin cities and attend a weekly support group for people pre- and post-transplant at the U of M. A little harder now I’m not allowed to drive. I have no idea how long it will be before I’m eligible for transplant.

@jim1208 I am very familiar with your symptoms. I was also very cold all of the time. I was so bundled up in bed in bed it was ridiculous. I went about 16 or 17 months on the waiting list and then somehow was transplanted sooner than anticipated, in September of 2016, at MELD 28. I was about to have my MELD increased and things had gone downhill so perhaps they can take all of that into account.
I had severe HE episodes but most of the time I was very cognitive and able to live my normal life. I did have additional symptoms -- lowering platelet counts, cramps in my legs and hands, fluid retention in my feet frequently, and my handwriting deteriorated terribly. My hands were very shaky. I could not take a picture they were so shaky, and I couldn't get a spoonful of soup to my mouth without it spilling. Also, I did have to nap daily.

You are in one of those tough situations. Not sick enough to get high on the list, but perhaps feeling miserable? I guess you just have to hang in there until things get worse, but some people are able to avoid a transplant with a good diet and other methods. That of course is the best, if you are feeling fairly well.
JK