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Liver transplant - Let's support each other

Transplants | Last Active: Nov 13 8:00pm | Replies (1617)

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@contentandwell

@rodney9999 I too welcome you to Connect. Congratulations on being post-transplant. I had a transplant in September, 2016. You were very fortunate to have a transplant at a MELD 23, I presume that was because you agreed to take a high-risk liver. I discovered that some of the reasons that cause them to be considered "high risk" are often not serious, and of course Hep can be cured now after having a transplant. I was never approached about that but if I had been, particularly at the point I was at, I definitely would have considered it also.
I am happy that things are going well for you. Things have been great for me ever since my transplant, other than a few pesky things caused by the immunosuppressants. I can live with those though.
How wonderful that you were able to help another family with their fears also. Like you, I was not yet at the point where my team thought I would get a transplant (MELD 28, which at that time was lower than typical in Boston) but a liver did come through for me at that MELD, which was great because in the month prior things had really gone downhill. My MELD was due to be increased soon.
JK

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Replies to "@rodney9999 I too welcome you to Connect. Congratulations on being post-transplant. I had a transplant in..."

Thank you everyone for the nice welcome. My team informed me without acceptance of a higher risk liver, I would need a MELD of around 32. I knew I’d never last that long.

As you indicated, It seems that a liver considered high risk may actually not be serious and is treatable. I know everyone’s situation is different but for me it was the best option.