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Liver transplant - Let's support each other
Transplants | Last Active: Nov 13 8:00pm | Replies (1617)Comment receiving replies
Thank you for moving the posting. I was on the waitlist for 6 months. I realize it is early post transplant however I am feeling well.
I know everyone has a story and mine is a long one; however I just wanted to share a quick story. During a post op follow up appointment with my doctor, he asked myself and my wife to speak with another family regarding accepting high risk Hep B/C livers. This particular family was nervous, just as I was, about signing consent to accept such an organ if one became available. Without any doctors present, this family after talking with us for about 10 min and looking at me, signed consent.
For me, I was very sick however my MELD wasn’t high enough to warrant transplant. I’m realizing now that could have been the best decision of my life.
Replies to "Thank you for moving the posting. I was on the waitlist for 6 months. I realize..."
@rodney9999 My son with PSC is on the wait list at the University of Utah. Currently they do not transplant high risk livers. If & hopefully when they change their policy our son would accept a hep C liver if one became available. Thank you for sharing this post. I wish you all the best on your journey to complete recovery:-)
Hi, @rodney9999. I want to congratulate you on your recent liver transplant! I am happy that things are going well for you. I am 10 years post transplnat and I can remember the emotions as if it were last week!
Wow, that was a real honor for you and your wife to be asked by the doctor to speak with another couple about your experience with your decision to accept an at-risk (is that the correct term?) organ. That will be one of the moments that they will never forget. I look forward to hearing more of your story and your new life here on Connect.
As others have already told you, this is an inspiration. You and your wife are living examples of what is possible.
Do you require any extra medication,treatment, or monitoring due to receiving the HepB/C liver?
Oops, I almost forgot to say, "Welcome" to Connect!
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That is a powerful story, @rodney9999. It can really help to hear from others who have been there to allay anxieties and fears. It must've been very rewarding to have helped the other family feel less nervous about a life-changing decision. With Connect, you can continue to help others through your experiences. Glad you're here.