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Liver transplant - Let's support each other
Transplants | Last Active: 14 hours ago | Replies (1623)Comment receiving replies
I am constantly amazed at the level of support and compassion that all of our members are share so generously. And with that in mind, I want to drop in on some recently acitve members who came here for support for updates.
@nanaking, I am thinking about you and your brother on this rainy Kentucky morning. Were you able to schedule an appointment at UC? Will he need to be re-evaluated for the Ohio transplant list?
@frankw54, How are you getting along as you begin your 2nd year with your new liver? The last time we talked, you were wondering what to do with your time. What kind of ideas have you come up with? (I know that @contentandwell would welcome your experience in the HE discussions)
@godlygal, I hope that you have found a sense of peace and direction with your caregiver role for your friend. How are you getting along? What kind of support are you getting? How can I help you?
@shelly63, I was not familiar with Budd-chiari, so I googled it. https://rarediseases.org/rare-diseases/budd-chiari-syndrome/
I also had a rare liver disease (PSC). I am thinking about you. How did your appointment go?
Members old and new - Add your updates, too.
Replies to "I am constantly amazed at the level of support and compassion that all of our members..."
@frankw54 @rosemarya Of course, Frank is also blessedly beyond this, but I am happy to answer any questions that anyone may have about HE episodes. For me, it was the most horrible part of cirrhosis, other than when I was having one I was entirely lucid and cognizant, but when I had those episodes it was beyond horrible.
JK
@rosemarya
Update on my itchy rash
After consulting my PCP and 2 dermatologists the conclusion is ecxema. It is just starting to phase out and I am hoping it continues that way. I have a collection of medications creams shampoos etc and truly none of them gave me much relief. I also have had asthma flare ups and I understand this goes along with eczema and liver disease. Does anyone have more info on how this all works and if they have any advice.
Also...the State of FL is working very hard with our Congressmen and our new Governor DeSantis to fix the environmental disaster with our waterways and Gulf. The red tide, microcystins and blue green algae have put a major dent in our tourism. We now know for sure that the microcystins are very harmful to the liver and that the airborne particles are far more prevalent than first discovered. We are now paying attention...much too late. The rest of the country is comparing notes with their waterways and hopefully we can all get the information we need to be aware of what is a very serious danger to us all...especially those of us with liver disease.
Hoping all of you had a great Valenine's Day!
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@rosemarya I'll give you our Tim update. He has been doing speech for his chemo brain for about a month now. I have seen improvement! (Some days are definitely better than others.) My goal is for him to be doing well enough that I'll feel comfortable leaving him for a few days so I can help our daughter after our grandchild arrives the end of March!
Blessings,
JoDee