@frankw54 That's amazing that you were on the list for such a short time. Were you late getting on the list and then your MELD increased dramatically? I was on it for about 16 months. I am happy for you that the wait was short and it's all history now. It really is a wonderful feeling to have it behind you.

I too had HE episodes but I was fortunate in that mine were distinct and somewhat predictable. Sometimes I woke up with one. When I was prescribed xifaxan I went almost a year with no episodes at all so I never had to stop driving. The summer before my transplant (the transplant occurred in September 2016) I told my husband that I did not feel comfortable driving long distances anymore. I was worried if I felt an HE episode coming on I would be far from home.

Since my transplant I have resumed a very normal life, doing more than I had been able to do for quite a while. I am older so I work hard at staying in shape, a very worthwhile pursuit for people of all ages. You ask what to do with yourself -- that's a good start. Also, I did volunteer work for a while, and if you have the time there are even some part-time jobs out there. I am presuming you are retired since you are asking what to do with yourself.
The options are endless, depending on what you would enjoy. There are now no restrictions for you.
JK

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